Continuing with the last post and expanding on the "when your hands are too cut up to squeeze those lemons and make lemonade" I'd like to share a story. Nearly 6 years ago a miracle happened for us. We became parents after years of doctors telling me I would have a very hard time conceiving because of my PCOS. From the minute I found out I was pregnant I was sure it was a girl. I had wanted a baby for so long and the thought of bows and ruffle butt bloomers still makes my heart soar! Little girls are so fun!
So this precious, miracle, baby girl arrives and for the first time in my life I experienced a love so overwhelming it just made me cry, a lot. I was weeping for the hurts she would one day feel. My fears about being able to protect her and care for her the way she deserved. Like a bubbling brook the emotional shower kept sputtering from my eyeballs. Like any good girl would do, I phoned a friend. But this friend is also the best mom ninja ever, she's my mommy. I told her how scared I was that I would mess up, fail this sweet innocent baby in some way, and how the need to protect her and keep her safe was just too intense to handle alone. My sweet mother laughed at me a little, and told me to stop, sleep, and pray. I have thought back at this moment several times over the past 5.75 years, I still don't know if it was Satan messing with me in the weakness of my postnatal hormone crash, or just the natural progression of oxytocin being released to cause a chemical meltdown in my brain.... but one thing is for sure my heart grew that day and I realized I could love deeper than I ever imagined and life would never be the same again.
The day Reagan and I went in to the pediatrician's office they asked her a lot of questions. I tried not to insert myself as much as possible and I just stood in the corner listening. Reagan couldn't sit still she was so anxious. She hopped back and forth across the colored tiles on the floor, only stepping on the green and purple ones. After a few minutes of watching her the doctor asked "why won't you step on the red, gray, or blue ones?" Reagan said "Because that would be wrong and I would die" like it was nothing. "Oh, interesting" said the doctor. She asked Reagan a few more questions and then she looked at me and said "Mom, Reagan, in my opinion, has OCD with anxiety. I want a full psych evaluation done on her and I am sending you all to a therapist". Now, OCD on it's own is not something that scares me. My mother and my sister both have OCD, it is genetic like many other mental health issues and I honestly don't mind if we have to kiss three times, hug three times, give 3 high fives and bless each other's forehead with a cross every day before she gets out of the car. I don't mind that she has to sleep with the same pillowcase and blanket at night and she has had the same baby doll since she was one. OCD is something you can live with as long as those around you are patient, compassionate, and willing to bend a bit. But, the anxiety that has come with it is stealing my baby's joy and that I have a huge issue with. We are currently in the very messy process of getting her school to write up a formal IEP for how to work with Reagan in the classroom. I think it is silly that it even has come to this, but when you have a very rigid teacher and a child who needs a little extra understanding sometimes, and IEP provides accountability. Reagan is also in therapy once a week with a therapist who specializes in helping anxious kids. They do yoga together, draw, play with sand, and talk lots. If your child is struggling I can not emphasize enough how important it is to speak out and get help! It has been eight weeks since we started therapy and Reagan is doing so much better. We still have a long way to go, but she is learning tools now to help her manage her emotions that will carry over to much bigger emotional struggles in her teen and adult years. I also think it is extremely important that my child have a safe adult she can confide in who is not me or her dad. There is no threat of disappointing us or letting us down. She doesn't feel judged or like she is being graded when she talks to her therapist, she feels safe. That is exactly what she needs right now and if I need to be brought in on the loop her therapist and I email throughout the week. Thank you sweet Jesus for modern medicine, health insurance, and loving medical professionals who recognized my daughters need and acted. We did have a full psychological evaluation done which confirmed everything the pediatrician suspected and put Reagan in the anxiety range for medication. However, at this time we have chosen to battle her anxiety with therapy, yoga, and prayer. We will continue to re-evaluate as the days roll by, but we have been panic attack free for five weeks! God is good.
Now I am going to stop sharing about my daughter and speak to your hearts for a moment. Our lives are so messy. Part of me did not even want to share this story because that part of me that wants to protect my baby girl is still so incredibly strong! But, if there is even one little one out there struggling in a similar way I want to give that mama hope, and I want to assure you that there I a light at the end of the tunnel and it is OK if the problem is bigger than what you can handle at home! It shook my soul to watch my strong confidant daughter crumble the way that she did. It took me back to that night in the bathroom crying on the phone with my mother, telling her I never wanted my baby to hurt and I didn't know how to protect her from life. 24 year old me didn't know that the reason it felt so impossible is because it is! I can not keep her from hurt because we live in a broken, imperfect world." But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” 2 Corinthians 12:9. It is in our brokenness that God's light comes through the cracks and sustains us. God is working in Reagan and she is going to be fine, but it is not because of what I have done, it is because I was wise enough as her Mama to know we needed help from outside and ABOVE! If you are feeling like you, or someone you love needs a little help from outside or above -reach out. If you have struggled with OCD or Anxiety share what worked for you below. I would love to hear some of your helpful hints. I think the hardest part about being a Mom sometimes is realizing you can't do it all on your own. You want to be super mom, you want the applause and the standing ovation for rocking the pinterest cupcakes, making sure everyone has their personalized lunches in their cute little backpacks. You stuff in the hand written notes, or cut the crusts off their favorite sandwich because you are a mom and we love all those little details that make our kids feel loved. I hope if nothing else, that after reading this blog you understand that if a time comes when you all do need to seek out mental health professionals it makes you SUPER mom for noticing and acting on your gut.
Building my strategy for praying for my children began with praying over my bible for a few days and choosing a scripture passage for each of my children. I chose one that fits where I see their strengths and struggles now and in the future. I printed off the scriptures for each child and hung them on their bedroom doors. Every night when I put them to bed, and every morning when I wake them I pray their verses over them. Reagan's is Philippians 4:6&7 " Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus." The first verse is very well known in most Christian circles and I want her to remember that when she is anxious that is when she should pray the most. But it is actually the second verse that I think has the most power. I claim that in Jesus name, Reagan will receive that peace from God that transcends understanding, anxiety, OCD, moving every 12-18 months, rigid teachers, mean kids.... EVERYTHING. Imagine if that verse stays posted on her door until we move again, that is another 600 times those words will be spoken into her life. It is deeper than just a prayer, it is modeling a life that seeks Christ. This is the battle her dad and I will be fighting for her until she is old enough to fight it herself. we are grateful that modern medicine gives us so many options, yet we know God put this very struggle in Reagans life for a reason and it keeps all 3 of us dependent on HIM to give us that deep peace that only the Holy Spirit can give.





Hi Bailey,
ReplyDeleteMy heart is with you, you're such a SuperMommy and admire you...it takes a lot to keep a household running with 3 lil ones and a whole move! My heart is also with lil Reagan ...seems like such a sweetie- total doll, I love all your pictures...thank you btw....have you mentioned a 504 plan to the school? It may help. Is Reagan not meeting her benchmarks? Is she behind academically? Does her OCD/anxiety prevent her from accessing the curriculum? How is she doing socially? If she is doing well academically and socially, you may need a 504 plan, not a full blown IEP, maybe, could be a good option for you. The 504 puts into place the accomodations she may need to benefit educationally....still makes the school team accountable. These are a few of my thoughts in reading your passage in regards to special education for my sweet lil grand niece!! Much much love to you all from your auntie here in California!! Btw, love how you had Reagan calm down...in feeling your breathing...you are awesome!! Sending you, your sweet lil ones and my nephew Joe big hugs...I'll pray for you right now!
XOXOXO Love, Aunt Barbara....it'll be ok Bailey...Reagan is a SUPERSTAR! Just like her Mommy! Love you!